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Kids Brain Health Network - KBHN*

$50.8 million for 2009-24
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Kids Brain Health Network

Number of partners
353

Partner contributions
$48.3 million

Headquarters
Simon Fraser University, Surrey, British Columbia

Chief Scientific Officer
James Reynolds James Reynolds

CEO
Nicky Lewis Nicky Lewis

Board Chair
David Kuik David Kuik

Board Vice Chair
Donna Thomson Donna Thomson

Improving outcomes for children and families impacted by neurodevelopmental disabilities


The opportunity

In Canada today, 10-17% of all children live with a neurodevelopmental disability. Over the course of their lives, more than 90% of these children will experience limitations that impact their quality of life. Known globally for its excellence in neuroscience and brain-related research, Canada created a national network that embraces the vision that all children living with neurodevelopmental disabilities enjoy quality of life, inclusion in all aspects of society and reach their full potential.

How KBHN is seizing the opportunity

Kids Brain Health Network (KBHN) researchers collaborate with community, industry, government and non-profit partners to develop and implement innovative solutions and services with the potential to improve the lives of children living with neurodevelopmental disabilities and their families. This collaborative effort is providing health care professionals, policy makers, caregivers and families with tools and information to promote earlier identification, better treatment, and optimal outcomes for children today and in the future.

Among the results

  • Genomic Assessment Tool – A tool that allows for early identification of infants and children at-risk for FASD that will support earlier diagnosis and access to supports.

  • Nurturing the Seed - A culturally informed developmental support plan to meet the specific needs of infants/young children in Indigenous communities who are at risk for developmental delay.

  • Better Night Better Days – An eHealth sleep program for children with a neurodevelopmental disability. This is the first trans-diagnostic eHealth program created to support these children and their families.

  • Dino Island – A serious cognitive intervention game that demonstrates significant gains on attention and executive function in children with neurodevelopmental disabilities.

  • Social ABCs – An intervention program that targets 18-30 month olds with language delays or early signs of autism that shows improvement in verbal capacity, social initiation and peer engagement.

  • The Fetal Alcohol Resource Program (FARP) – A community partnership focused on supporting individuals & families affected by FASD by facilitating access to regional services and offering training for professionals across such sectors as justice, education, health and community services.

  • New Physical Activity Coaching (NPAC) Program – Promoting access to, and inclusion in, community-based physical activity programs, this intervention engages the whole family around the child. The next phase of the project will include expansion of these programs to schools and Indigenous communities.

Connect with KBHN


* (formerly known as NeuroDevNet)

 

News
May 11, 2020
February 27, 2020
Events
Features
Eye tracking shows promise as screening tool for children with FASD
August 18, 2016
Two groundbreaking discoveries by NeuroDevNet-supported researchers could contribute to the development of a less expensive and faster screening tool to identify young children, and even infants, with fetal alcohol spectrum disorder (FASD). Read more
NCE community members among winners of prestigious Canadian science awards
February 18, 2015
The winners of prestigious science prizes given out to some of Canada’s top researchers include innovators who have made important contributions to NCE-funded networks and centres. The annual awards from the Natural Sciences and Engineering Research Council (NSERC) are bestowed for a wide range of world-class achievements by Canadian researchers that boost discovery, training and innovation in Canada. His Excellency the Right Honourable David Johnston, Governor General of Canada, honoured the winners at a ceremony at Rideau Hall on February 17. Read more
Inflatable therapy vest may help children with neurodevelopmental disorders
September 27, 2012
Research conducted as part of a Mitacs Accelerate internship is helping show that the inflatable Snug Vest can help treat autism spectrum disorders. Deep pressure therapy, using devices such as weighted vests, is widely used to treat autism spectrum disorders, yet little scientific evidence exists to back up its effectiveness. Research conducted as part of a Mitacs Accelerate internship is providing that evidence, helping boost a young company’s product sales and development in the process. Read more
Gaming your way to better health
April 24, 2012
An innovative research project using video games and physical activity continues to demonstrate that children with brain disorders are more able to learn new behaviours than previously thought. Read more
Videos
Watch Video
Mindfulness for Teens with ASD and their Parents
March 21, 2017
Watch Video
TEDxYorkUSalon - Spectrum - May 28, 2016
March 3, 2017
Watch Video
Knowledge Mobilization, Research Impact, and the Changing Nature of Academic Work
December 9, 2016
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How to do great presentations: what they don't teach you in grad school
May 19, 2016
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FASD & Stigma: Why Do Pregnant Women Drink?
February 26, 2016
Watch Video
Webinar: Videos as KT
November 17, 2015
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Informing ASD Research with Stakeholder Input – Dr. Jonathan Weiss
June 9, 2015
Watch Video
Caribbean Quest: Gaming to Improve Attention, Memory and Executive Function for Kids with ASD FASD
May 22, 2015
Watch Video
What's it like to be a NeuroDevNet trainee?
August 5, 2014
Watch Video
Innovative Science Curriculum by FASD researchers - PD Day for Science Teachers 2014
April 30, 2014
Watch Video
FASD play: Jacob's Story
March 25, 2014
Watch Video
Exergame for Children with Cerebral Palsy
February 20, 2014